Thursday, 27 March 2014

Black Tulip is taking a break

Those of you who are kind enough to visit my blog regularly will know that Mr Tulip was diagnosed with Motor Neurone Disease (ALS) in autumn last year. Sadly he died this morning, very peacefully, and holding my hand.

In case anyone is wondering how I can write this now, I should explain that I've had a lot of this post prepared for some time. While the timescale was far shorter than either of us had hoped or expected, from the awful day when we got the diagnosis, the end result was never in doubt.

Pretty much the only thing that Mr Tulip asked of me was that I would keep this blog going (and by extension, would keep sewing regularly to provide material for it). Even last Saturday, when he was still very poorly from the chest infection, he was asking what I was going to write about the next day.

I promised him that I would maintain the blog, and I fully intend to do so. But first I need a break for a short time, while I come to terms with my new life.

I'll finish with a couple of photos of what was without a shadow of a doubt the happiest day of my life; our wedding in May 2004.



  1. Oh, I'm so sorry to hear this. What a sweet guy he was. Beautiful memories. Hugs and prayers...

  2. Dear Elaine, thank you for writing this. My thoughts and sympathies are with you. MND is such a cruel disease. When you want to blog again, we'll be here. Thinking of you, Lyndle

    1. Thank you Lyndle. I'm taking comfort from the fact that he was spared the later stages of what is, as you know all too well, a truly horrible disease. Three weeks ago we were on holiday in one of our favourite places, and while we weren't able to do as much as we would have liked, I have some very happy memories of the week.

      Also, I was able to arrange for some tissue samples to be donated to the main centre for MND research in the UK. So hopefully Mr T will be able to contribute in a small way to understanding what causes the disease, and an eventual cure. I know that it is what he would have wanted.

  3. Oh Elaine....My heart broke reading what you have written. I have no words that will even begin to bring comfort to you, so I will just tell you that you are in my thoughts and prayers. I am happy to read that you got to be on holiday with your love three weeks ago...I will await the time when you once again write on your blog!

    Be blessed my dear!

    1. Thank you Gina.

      I found a lovely quote today, which sums things up perfectly: “How lucky I am to have something that makes saying goodbye so hard.”